The Kelp Forest Suite

 ***Click Play Below to Hear Loren’s Voice***

This walking a line between living and dying continues to make me question my own depth. I’m in my late fifties and I’ve never really considered death before. I’ve got a lot of catching up to do. Turns out much of my time these days is spent trying to stay alive—doctors appointments, hospital stays, medications etcetera. All the while, considering what it means to be alive.

I was alive this week. 

Freed from the hospital and onto the open road. Searching for any spot I haven’t seen—and any facet of Susie’s personality I haven’t explored.

I’m a visual person. When I listen to a poem or story there are pictures playing in my mind. The news photographers, with whom I’ve been best paired over the years, challenged me with their beautiful pictures. Can’t have stunning scenery and dull verbs. Since I was young, I’ve pictured what it would be like to be a writer, in romantic terms. My ideal setting would be a cottage on a wharf, water lapping amongst the kelp forest, boat rigging clanging softly, an occasional seagull screech—and can’t do without a fog horn piping in. Inside the cottage—an ornery old cat, a big lovable dog, a potbelly stove and something warm in a cup. My writing table is at the window. The words just flow.

We pulled into Morro Bay this week, with great tunes playing in the background. I described to Susie my ideal nest for the night. She pulled the van over to the side of the road and tapped her fingers on the screen of her iPhone before driving about  another hundred yards. We pulled up in front the Estero Inn, a modern equivalent of the romantic writing scene I just described. There was only one room left—the Kelp Forest Suite.

To me, this is how it feels to be alive.

Loren

photo-20

Tagged with: , , , , ,
Posted in Uncategorized

A Blown Fuse and Safe Harbor

An Update From Susie:

Sea Lions barking outside, the sound of water clipping the shore as we rest in Morro Bay. Living in the moment. Loren had fluid drained from his brain on Thursday and was released on Saturday. We left for a drive in our van, Sunday morning. Day One (Sunday) Loren didn’t feel very good…after all he’d just had brain surgery.

We picked up new medication and started down the road when the “beeping” began. The entire day a beep,beep beep in our van. Loud music was the only cure and under ‘normal circumstances’ all would be well. Just can’t categorize this under ‘normal circumstances’… Loren didn’t feel good, my body didn’t cooperate—having symptoms of PMS, irritation, frustration, the VAN WAS BEEPING FOR THE love of $#%!

7:00pm we arrived at small hotel in Santa Barbara and after a stressful sleep associated with having brain cancer.  We awakened Monday with a new attitude. Monday morning, we/I dropped off a petition to the Santa Barbara Police Department for ticket issued to us at 7:01 am…Apparently we parked in the “loading zone” but NO parking zone 7:00-9:00am, in front of the hotel, the location they suggested we park. Yes I really did adjust my attitude 🙂 maybe I should have just paid the $53.00 ticket, it didn’t feel right to me.

Actually nothing would feel right to me at that moment, so why not challenge the ticket?

After this, we headed to my favorite store for tool belts and gear: ACE Hardware. Bought a 10 amp fuse and Loren taught me how to determine if the fuse is blown…THE FUSE HAD BLOWN. Corrected the beeping and we were on our way to Hwy 1. We feel good, my sweet man replaced my fuse (again).

Tom Petty blasting on the stereo, ‘California’s been good to me, hope it don’t fall into the sea,” loving life, laughing, reflecting, feeling “normal”. Found a cute little dive on Hwy 1 and slept in Room 3 for the night.

Awakened today, Tuesday 4/23/13, with a stomach ache. Loren battled all day, not feeling good. Once we were on straight road, Loren slept while I drove. I missed my beautiful partner, felt helpless seeing him in pain. During ‘our drive’ today, I stopped and took pictures often, talked to my dear friend Pam, told her I was lost and didn’t care, cried.

Loren slept, I drove through gorgeous Oak Forests, thinking of their roots and their slow sturdy strength.

Now, here we are in Morro Bay, California. Loren wanted a harbor with barking Sea Lions, fog horns, the clang of pulley’s and winches.
We’re in a safe harbor and the blown fuse has been replaced. Tomorrow is a new day. This being human IS a guest house…Thanks Rumi, I’m understanding, memorizing and learning.

Susie

tumblr_meejmyCXHo1rkw65ro1_500

Tagged with: , , , , , , ,
Posted in Uncategorized

The Text

The pathology results are in for the fluid in Dad’s brain…

There was a chance that the fluid was either (in order from best to worst news) dead/dying cancer cells, goo from the trauma of surgery (and/or hitting his head multiple times since), or new cancer cells forming.

—drumroll please—

JUST GOO!

HOORAY!  And a follow up MRI, 24 hours after surgery, revealed that it had not returned. Mom said she felt like driving down the street, windows open, yelling “THERE’S NO FLUID!!”

Mom had been {glam}camping in the new R.V. outside the hospital all week (with a german shepherd and two pomeranians in tow), and she was ready and waiting in her hospital-front campsite when Dad was sprung from his much bigger room at Scripps on Saturday morning (4/20/13).

From the hospital, he and Mom went where all people go after brain surgery———Nordstrom’s (of course)! Dad even attended a housewarming party that same day, where Graham played guitar and we all celebrated the latest good news.

On Sunday, Mom and Dad headed out for their first R.V. road trip! Their tentative plan is to drive up the coast toward wine country. I’ll post updates as I receive them.

Hannah

Oh—In case you were wondering how things went when Dad read (on his own blog no less) that I’d crashed his car on the way to the hospital; Here’s the text I received from him on Friday morning (the day after the accident and subsequent blog post, where I slyly revealed it to Dad):

Image

Tagged with: , , , , , , ,
Posted in Uncategorized

Surgery #2

Dad’s second brain surgery was at 7:15 this morning. He did very well and was awake and cracking jokes by 11AM—all while sporting an impressive head bandage (although he refused my plea for a photo shoot).

It’s not yet clear exactly what the fluid in his brain was but we will know more when the pathology results come back. Until then, he’s resting, listening to Native American flute and eagerly waiting to be “sprung” from the hospital.

My Dad was nice enough to hand me down his awesome black Prius (since he isn’t able to drive following brain surgeries). As I rushed down to the hospital in his car this morning, I was in a bit of a fender bender (which I haven’t revealed to Dad yet—so this post may serve as a barrier between me and his impending lecture).

I hurried to gather all my information from the glovebox and was panicked to realize my insurance card was missing. My first instinct was to call dad to save me—then I was struck with the horrible realization that I couldn’t.  I did, eventually, find the paperwork but that terrible feeling of not being able to reach him stays with me.

I need my dad here. I need him here to tell me that my insurance card is in the center console. I need him here to talk me through taking pictures, filing a police report and getting the other drivers’ information. And I need him here to scold me on the perils of driving too fast. I may not be able to cure cancer but I’ll be damned if I don’t do everything in my power to keep my dad here for as long as I possibly can.

So Dad, I’m sorry about the car—but I’ve never in my life looked so forward or been so grateful to have you here to lecture me.

P.S. Dad: The accident was totally not my fault.

Hannah

Tagged with: , , , , ,
Posted in Uncategorized

The Smaller Room

Well here we are again. A smaller room this time but back to the hospital it is. Allow me just a moment to say: Damn! And things had been going so well.

Here’s the timeline:

January 27, 2013 — Discovered brain tumor.

January 31, 2013 — Surgery to remove bulk of tumor.

February 1, 2013 — Tumor whisked away to a pathologist’s office.

February 11, 2013 — Pathologist’s report not good. Grade III Anaplastic Astrocytoma (brain cancer). 

In the following days all that medical jargon began sinking in. The message was loud and clear: shelf life diminished. Since then, we’ve had some awesome days. Bought an R.V. and have had lots of great beach nights with bonfires, music and the loves of my life. I also endured chemotherapy and radiation.

Here’s how we got to where we are today and this smaller hospital room:  I just finished my first round of treatments last week. I was told to expect to feel crappy for a week or so after radiation. But what I was feeling brought crappiness to a whole new level. Couldn’t get out of bed, my supply of smart ass comebacks was running low and the right side of my body was getting noticeably worse in terms of numbness from head to toe. So last night, Susie and I showed up at the hospital again with our best Oliver Twist voices—“Can I have some more sir?”

I only expected to have an MRI and a return trip home. Instead, back upstairs and news that I’d be cut open again. The neurosurgeon tells us that some sort of fluid has replaced the tumor and needs to be removed and analyzed. So now they’re going in a second time to remove the latest intruder. The good news is that it will be quick—-and I’ll still be smarter than you (that’s for Kathleen Bade and Hal Clement). 

So, this is going to go well and should only delay the start of our first big road trip by a couple of days. I’m looking forward to sharing some of my road stories on Fox 5 San Diego and I hope you’ll watch.

By the way, in an earlier post I mentioned my bad-ass Bond villain scar. Apparently, someone told the surgeon that I’m extremely vain. So, what I got instead was an artful and nearly invisible scar (even on a bald man). But in all seriousness, I have learned that so many of you are suffering with stuff I can’t even imagine. Illness. Loss of a child. Wondering how you’re going to take care of your family. And I’m beginning to understand that my list of troubles is small by comparison—but I’m with you. I write as therapy and I hope you too will find some small thing that will see you through the roughest times as well. 

Thanks for being here during my rough times. 

Loren

Image

Tagged with: , , , , , , ,
Posted in Uncategorized

Fox 5 Interview with Kathleen Bade

Today Susie and I stopped by Fox 5 San Diego for my first T.V. interview since the diagnosis. It felt so good to be back on air with my co-anchor Kathleen Bade. Click to watch the interview:  part one / part two

Thanks for watching guys. I appreciate all the positive energy you’ve shared with me over the past 2 months and over the past 25+ years.

Thank you.

Loren

ImageImage

Tagged with: , , , , , , , ,
Posted in Uncategorized

To Live

wigert_bougainvillea_glabra

{***Click here to listen to Loren read this post: To Live***}

Apparently, it’s not okay to acknowledge that cancer may kill you. People get really angry when doctors hand out life expectancies based on statistics. In an earlier post, I confided that my own doctor had given me 1 to 3 years until the “big sleep” and many of you reacted strongly.

I’ve thought about this a lot in the last couple months. Turns out I liked being informed of my statistical odds. I appreciate the sense of urgency it provides. It reminds me that there’s a lot of life left to live.

And everything seems new. Hiking with Graham. Blogging with Hannah. Cooking with Britta. Susie and I have been inseparable since January—and have even felt (in some morbid way) that it’s been like dating again.

I’ve also learned to like the challenge of making future plans. For example, I love the art of bonsai. Growing a miniature version of an adult tree takes a great deal of patience and years of planning.

I fully intend to live to see my gardens grow.

Loren

Tagged with: , , , , , ,
Posted in Uncategorized

The Waiting Room

photo-72

***Click Here to Listen to Loren Read This Blog Post***

The Waiting Room

Cancer involves a lot of waiting. Waiting for test results. Waiting for treatments. Waiting in offices. Waiting for certain therapies to end.

I’m waiting for the end of my first round of radiation and chemotherapy.

Everyday, for the last 5 weeks, I’ve visited a radiation therapy treatment center. At first, it was just me and Susie or one of the kids in the waiting room. As time passed, it got more crowded. There was the lady with the pretty hats and the bright smile. The husband and wife who always look so happy and upbeat—-and despite his artificial voice box, he always seemed to be ready to chat. In the beginning, they were just that: the hat lady, the man with the voice box.  But soon each of their personalities began to emerge.

The voice box man became Walter, a retired aerospace attorney with successful, grown children, who loved singing in his church choir. I learned that for the past 20 years he’s been fighting cancer as it roamed around his body. Not sure when it stole his voice. The point here is that he’s one of the happiest men I have ever encountered. He and his wife, Louise, go through this struggle without giving in or giving up.

The hat lady? Turns out she’s a neighbor. And the people who drive her? A different woman each day. These women are an accumulation of a lifetime of friends from her gym. They seem to make the daily outing an adventure rather than a chore. And, if the treatment is wearing on her, her bright disposition never lets on.

My waiting room friends are no different from the tens of thousands of San Diegans struggling with illness everyday. Sadly, too often we become identified as the hat lady or the voice box man because the disease has become what defines us. What I’ve discovered is what’s under the hat and behind the voice box; the family man with a love of music and the 84 year old who can’t wait to get back to her spin class with her friends. And, while I hate cancer, I’m so happy that it has given me a chance to learn from its’ survivors.

Go Team!

Loren

Tagged with: , , , ,
Posted in Uncategorized

The Soundtrack of Success

I take my victories as they come. Little ones are just fine. In an earlier post, I mentioned the soundtrack to my radiation treatments was extremely limited (i.e; the same song day after day). You were so kind to offer suggestions like wearing my own headphones and listening to my own playlist. The problem is I just can’t get the image of headphones melted into my ears out of my head. Still, I’m happy to say since that blog post my radiation team has expanded my listening choices. They didn’t say it was for my benefit—but I detect progress. 

Soundtracks are an important part of my family’s life. We are all musical. And I don’t mean that all of us are musically talented. Hannah and I ended up in the shallow end of the rhythm gene pool. We can’t carry a tune or play a note. But we appreciate music just the same.

Recently, Hannah and Susie have been creating playlists for their early morning workout group. They’re amazing. You can check them out on Spotify. Last night was our 26th wedding anniversary and I asked to Susie to make us a bedtime playlist. As I drifted off to sleep listening to it I realized just how important music has been in my therapy. Whether it’s Native American flute, Joe Strummer or The White Buffalo—I’m enjoying the soundtrack to this time in my life.

If you like good music, try this playlist one evening: http://open.spotify.com/user/1215968115/playlist/7IjbFobRHFt3w8BV99aq1N

And on the subject of music, it’s a busy weekend for my son Graham’s band NancarrowThey’ll be performing live at The Saddle Bar in Solana Beach, Ca. tonight 4/5/13 around 9pm and at The Griffin tomorrow night 4/6/13 in San Diego.

Hope to see you there with your cowboy boots on!

 

Loren

Image

Tagged with: , , , , , , , , , ,
Posted in Uncategorized

Dead Snails Leave No Trails

I went outside today for my early morning peak at the progress of this year’s roses. The stems are stretching toward the Spring sun—I love their deep red color at this time of the year. It’s good to see what a little compost and organic fertilizer can do. Apparently, the clouds of aphids that are flying over also like that deep red color—it’s their trigger to land on our rosebuds and start messing things up. Thankfully, this is a manageable situation for us organic gardeners—if we persevere.

Here’s what I like to do:

About this time of year, I  check the rosebuds for aphids. Yep they’re there. Next, I use a regular old spray bottle to physically wash the aphids off each bud. Do it early in the day. If that doesn’t do the trick—use the lightest setting on a garden hose nozzle to get rid of the stragglers. Once the aphids are washed off, they don’t crawl back up. The best part is the aphids you kill now will not breed later in the season. Birds, ladybugs, praying mantids and loads of other beneficial creatures also like to eat aphids—so, NO POISON PLEASE

If you want this and other organic gardening tips, you can find them in the revised edition of my book Dead Snails Leave No Trails, just released yesterday! It’s a helpful guide for eco friendly gardeners. You can purchase the book along with my other titles on the Random House website: Click here.

Also, as your roses begin to bloom, post your pictures on my Facebook page. The prettiest rose of the bunch will win a signed copy of my new book!

I look forward to seeing all your Spring roses.

 

Loren

Image

Tagged with: , , , , , , , , , ,
Posted in Uncategorized

Enter your email address to follow this blog and receive notifications of new posts by email.

Join 19.8K other subscribers
All Posts